Welcome to the International Factor IX Treatment Network

The International Factor IX Treatment Network is a study group formed with the goal of investigating the treatment and complications of hemophilia B. This goal will be met by identifying researchers with an interest in collaborating in network initiatives. Activities will be conducted throughout the world with the endorsement of the major hemophilia-related research societies.


Endorsement obtained from:

HTRS

ATHN

Grupo Claht

SETH

The International Factor IX Treatment Network is an investigator-initiated study funded by an unrestricted grant from:

GRIFOLS

Steering Committee:

Erik Berntorp, M.D., Ph.D.
Centre for Thrombosis and Haemostasis
Malmö University Hospital, Lund University
Malmö, Sweden
Erik.Berntorp@med.lu.se

Jan Astermark, M.D., Ph.D.
Centre for Thrombosis and Haemostasis
Malmö University Hospital, Lund University
Malmö, Sweden
Jan.Astermark@med.lu.se

Amy Shapiro, M.D.
Indiana Hemophilia and Thrombosis Center
Indianapolis, Indiana, USA
AShapiro@IHTC.org

Sharyne Donfield, Ph.D.
Rho, Inc.
Chapel Hill, North Carolina, USA
Sharyne_Donfield@rhoworld.com

Data and Statistical Coordination:

Jen Waters, J.D.
Rho, Inc.
Chapel Hill, North Carolina, USA
Jennifer_Waters@rhoworld.com